This page includes links through to other organisations and charities, which may provide other useful help and information regarding palliative care. LOROS takes no responsibility for the content of these external websites.
LOROS is regulated by the Care Quality Commission, which promotes improvement in the quality of the NHS and independent healthcare providers. The latest inpsection reports for both the hospice and Manor Croft Palliative Day Therapy Unit can be viewed and download from the Commission.
Hospice Care
Help the Hospices
Help the Hospices is the national charity for the hospice movement. Hospices give unparalleled care to people who are facing the end of life - and to those who love them.
Help the Hopsices launched a report, Hospice and Palliative Care, Access for All, to coincide with World Hospice and Palliative Care Day on October 7th. The report reveals that due to a number of factors, including problems with referral processes and funding provision, many groups fail to access adequate hospice and palliative care services, including the homeless, travellers, people with learning disabilities and people living in institutions, the elderly and minority ethnic groups among others. As well as highlighting the problems of patchy provision of palliative care, the report highlights successful projects run by many hospices which are trying to redress the balance, although with limited resources. Please click here to download a copy of the report.
European Association for Palliative Care
The European Association for Palliative Care (EAPC) was established on 12 December 1988, with 42 founding members and following important initiatives by Professor Vittorio Ventafridda and the Floriani Foundation. The aim of the EAPC is to promote palliative care in Europe and to act as a focus for all of those who work, or have an interest, in the field of palliative care at the scientific, clinical and social levels.
Hospice Information
Hospice Information is a partnership between Help the Hospices and St Christopher's Hospice.
Patients & Carers
Hospice Net
Information portal for patients and families facing life-threatening illness.
The Patients' Forum
Network of national and regional organisations concerned with the healthcare interests of patients, families and carers.
Coping with Cancer
Coping With Cancer exists to help the people of Leicestershire and Rutland cope with the practical and emotional problems, which can arise following a diagnosis of cancer.
Crossroads - Caring for Carers
Crossroads is Carer led so the needs of Carers are paramount. All Crossroads schemes provide short term breaks for Carers in the home and may, depending on the scheme, provide other services. Crossroads is available in South Leicestershire and Leicester City.
Dying Matters
Dying Matters is a broad based and inclusive national coalition of just under 7000 members, which aims to change public knowledge, attitudes and behaviours towards death, dying and bereavement.
Cancer Related
Cancerbackup
Cancerbackup is Europe's leading cancer information charity, with over 4,500 pages of up-to-date cancer information, practical advice and support for cancer patients, their families and carers.
Marie Curie Cancer Care
Marie Curie Cancer Care welcomes you to its online home. This website is for anyone looking for information about the charity's work with cancer patients and their families across the UK.
Breast Cancer Care
Breast Cancer Care is the UK's leading provider of information, practical assistance and emotional support for anyone affected by breast cancer.
riprap
Welcome to riprap, a web site that can help you cope when a parent has cancer. You'll find stories from other young people going through the same situations as you are. You'll also find information and tips to help you understand and deal with what is going on in your family.
Lymphoedema Support Network
The Lymphoedema Support Network (LSN) takes the lead role in educating and supporting other patients with this condition by providing a high standard of information and promoting self-help.
Lymphoma-Net
Lymphoma-net.org aims to help improve communication about non-Hodgkin's lymphoma and its treatment.
Other Long Term Illnesses
Motor Neurone Disease Association
LOROS works closely with Motor Neurone Disease Association (MNDA) and healthcare providers to povide care to patients with Motor Neurone Disease (MND).
Alzeheimer's Disease Society
The Alzheimer's Society is committed to maintaining, improving and promoting its unique knowledge and understanding of dementia.
Fundraising
National Association of Hospice Fundraisers
The National Association of Hospice Fundraisers is the UK professional association for fundraisers working in the hospice movement.
The Charity Commission
The Charity Commission gives the public confidence in the integrity of charities in England and Wales.
Charity Times
Charity Times is the leading business and management magazine for UK charity professionals.
Bereavement
Cruse Bereavement Care
Cruse Bereavement Care exists to promote the well-being of bereaved people and to enable anyone bereaved by death to understand their grief and cope with their loss. The organisation provides counselling and support. It offers information, advice, education and training services.
National Bereavement Partnership
The National Bereavement Partnership is a charity that provides a national helpline offering information advice and support to both families and professionals and specialises in information surrounding the post mortem process.
Jewish Bereavement Counselling Service
For members of the Jewish Community.
The National Association of Widows
For widows of all ages.
The Natural Death Centre
The Natural Death Centre is a charitable project launched in Britain in 1991. It aims to support those dying at home and their carers, and to help people arrange inexpensive, family-organised, and environmentally-friendly funerals. It has a more general aim of helping to improve the quality of dying.
Winston's Wish (for bereaved children)
For bereaved children who have experienced the death of someone close.
Education
National Electronic library for Health
The National electronic Library for Health Programme is working with NHS Libraries to develop a digital library for NHS staff, patients and the public.
PubMed
Search database for biomedical literature - no registration required.
Innovations in End of Life Care
A web based international journal on end of life care
Quality of Life Instruments Database
QOLID is a new and comprehensive database in the field of Patient reported outcomes (PRO's) dedicated to all those involved in the evaluation of health outcomes.
European Journal of Palliative Care
The European Journal of Palliative Care is the official journal of the European Association for Palliative Care.